Useful Links

EU, government and national representative bodies

Action Cerebral Palsy
A national consortium of specialist charities (including Pace), working with children with cerebral palsy and their families.

Council for Disabled Children
CDC works to influence national policy that impacts upon disabled children, children with special educational needs (SEN) and their families.

CP Sport
CP Sport is the country’s leading national disability sports organisation, supporting people with cerebral palsy reach their sporting potential.

Direct Gov – Children with Special Educational Needs
Public services all in one place.

Every Disabled Child Matters
Getting rights and justice for every disabled child.

The National Children’s Bureau (NCB)
A leading children’s charity that for 50 years has been improving the lives of children and young people, especially the most vulnerable.

Scope
Charitable organisation in England and Wales whose focus is people with all kinds of disabilities, not limited to cerebral palsy. Their aim is that disabled people achieve equality: a society in which they are as valued and have the same human and civil rights as everyone else.

Comenius (Erasmus Plus)
Empowerment of children with disabilities through augmentative and alternative communication.

Information, advice and resource providers

BBC CBeebies Special Needs
CBeebies online has a range of content for children with special educational needs.

Bliss
For babies born too soon, too small, too sick.

Cerebral Palsy
Providing information, help, support and advice for those affected by cerebral palsy. Creating awareness and campaigning for improvement.

CHAT
Children Health and Therapy, including funding for respite care.

Contact a Family
Contact a Family is the only UK wide charity providing advice, information and support to the parents of all disabled children.

Disabled Go
Provides free detailed access information for children and adults with a disability.

Disabled Living Foundation
A national charity that provides free, impartial advice about all types of disability equipment and mobility products for older and disabled people, their carers and families.

Just4Children
Just4Children is passionate about the relief of sickness and preservation of the health of children in the UK and Ireland by providing and assisting in the provision of grants to allow them to obtain medical treatment, therapies, living environments, equipment and holidays that would not otherwise be available to them.

Moore Blatch Solicitors have produced a series of factsheets which may be of interest:

EHC Plans

Judicial Review

Personal Health Budgets

Hospital Discharge

MERU
MERU designs and manufactures specialised equipment for children and young people with disabilities. Some children have disabilities so complex that no available equipment meets their needs. At MERU, they use their design and engineering skills to custom make exactly what each child needs to achieve their goals.

Nutritionist Resource
An online directory advertising qualified nutritionists in the UK.

The Orpheus Centre
A residential performing arts centre for young disabled adults based in Godstone, Surrey. Catering for the 18-25 age range and offering a mixture of performing arts and independent living skills.

PrAACtical AAC
Support and advice for parents and families on language learning.

Riding for the Disabled Association (RDA)
RDA allows people to achieve their dreams and fulfil their potential.

SBS Educational
For more than 20 years, Step by Step has been working with educational experts and professionals to lead the way in providing innovative and inspiring Early Years resources. Now SBS is part of the hope education group.

SNAP
The leading recruitment agency for special needs nannies and care workers who wish to work with babies, children and young adults with additional needs – and their siblings.

Therapy Directory
Promotes the benefits of complementary therapy.

Continuing Health Care

The Care Act

Adult Safeguarding

Regional bodies

Buckinghamshire Family Information Service
The Buckinghamshire Family Information Service (BFIS) provides free information, advice and support on a wide range of topics that may affect your family. This includes activities, events and services for children up to the age of 19 (25 with a disability). Information can be found on all of your childcare needs including full time nurseries/preschools, childminders, afterschool provision and what’s on offer in the holidays.

BFIS can be contacted on 0845 688 4944 or 07786 202920; www.bucksfamilyinfo.org; email familyinfo@buckscc.gov.uk; or like us on Facebook or follow us on Twitter.

Milton Keynes Parent Partnership Service
Offers independent information, advice and support to the parents of children who have, or who may have, a special educational need.

Conductive education resources

Heel and Toe Children’s Charity
Provides therapy to children with cerebral palsy and other physical disabilities.

Megan Baker House
Specialists in providing free conductive education to children and young adults with cerebral palsy, head injury or stroke.

National Institute of Conductive Education
A national charity with an international reach, established in 1986 to develop and advance the science and skill of CE, especially its teaching.

Percy Hedley Foundation
The leading provider of conductive education in the north east of England.