Action Cerebral Palsy

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Action Cerebral Palsy

I am delighted to let you know of an exciting development in the charitable sector helping children with motor disorders, such as cerebral palsy. Pace has joined together with nine other charities to form a consortium called Action Cerebral Palsy, which aims to significantly improve UK provision for children with cerebral palsy and their families. The consortium members are as follows:

·    Legacy Rainbow House, Ormskirk
·    London Centre for Children with Cerebral Palsy
·    Megan Baker House, Herefordshire
·    National Institute for Conductive Education, Birmingham
·    Pace, Aylesbury
·    Paces, Sheffield
·    Percy Hedley, Newcastle
·    Rainbow Centre, Fareham
·    Steps, Loughborough
·    Stick’n’Step, MerseysideThe consortium is also extremely pleased to announce that it has engaged the services of The Whitehouse Consultancy as its pro-bono charity client for 2014. Whitehouse is one of the UK’s pre-eminent public affairs consultancies and will work with ActionCP to help us inform political and public debate and to influence policy development as it relates to childhood cerebral palsy. The consortium is currently developing its strategy, but our broad policy goals are as follows:1.       Improved public and political awareness of issues facing children with cerebral palsy
2.       Creation of a “movement” for children and young people with CP and their families
3.       Development of a national multi-agency strategy for cerebral palsy which:
–      Levels the playing field for children with CP across the UK
–      Recognises and harnesses the benefits of intensive intervention
–      Establishes a national early intervention programme for young children with CP
–      Establishes appropriate  funding for intensive and integrated intervention
–      Ensures the best possible training for professionals working with children with CP

4.       Development of a national cerebral palsy taskforce to ensure the delivery of the national CP strategy

With the forthcoming Children and Families Bill, we believe that this initiative provides a remarkable opportunity for PACE and Action CP to make a real difference to the many children across the UK with cerebral palsy. You will hear more about ActionCP soon, but in the meantime, if you have any questions do please let me know.

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